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Caley is 10 who lives w/ a rare & terminal lung disease cystic fibrosis (commonly known as cf) & cf related diabetes. As parents we strive to give her the best “quality of life” we possibly can but the fact is, she is deprived of hours a day & several weeks every year of being a child since 4 weeks old. Procedures, hospital admissions & sugeries are all too common for Caley. As she gets older her cf progresses, her admissions at LPCH become more frequent. A lung transplant was inevitable until we were recently told that she is NOT a candidate at this time because she wouldn’t survive the surgery. Her lung function stands at 43%. When it drops below 40 she is in the danger of fighting for her life & w/o a transplant we stand to lose our little girl that we so desperately & tirelessly have tried to make her life as normal as possible.
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